As of when we left on the 21st Lily had one of her belly button tubes out, she was taken off her intubation tube and back onto CPAP, she was going to be fed 1 ML more each feeding, which if she tolerates she will be able to get off some more IV’s . The more tubes and IV’s she can get off the better because that means she is doing it on her own and does not need the help of the machines. One GREAT thing we got to experience on the 21st was I got to hold Lily for the first time that was an AWESOME feeling. I am hoping there is more of that to come.
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